Teddington Trust

EDM number 1046 in 2016-17, proposed by Stuart Donaldson on 09/03/2017.
Categorised under the topics of Charities, Diseases and Health services.

That this House supports the work of Teddington Trust; commends it for raising awareness of Xeroderma Pigmentosum (XP); acknowledges that XP is a very rare genetic condition characterised by an extreme sensitivity to ultraviolet (UV) radiation which affects fewer than 100 patients in the UK and equally low numbers around the world; notes the charity’s hard work in providing UV blocking face protecting visors or hats, guidance on UV protective clothing standards and suppliers, and the safe spaces that have been designed specifically for families affected by not only XP but other UV sensitive disorders; and highlights that UV radiation is present during all daylight hours, and unless patients with XP are protected from UV radiation, their skin and eyes will be severely damaged and this can lead to skin cancer; recognises that there is currently no cure for XP, but much can be done to prevent and treat some of the problems it causes; and wishes the charity success in continuing to raise awareness.

This motion has been signed by a total of 32 MPs.