Rate Of Transplantation For People With Cystic Fibrosis

EDM number 366 in 2013-14, proposed by George Howarth on 08/07/2013.
Categorised under the topics of Diseases and Health services.

That this House recognises Cystic Fibrosis week, 24 to 29 June 2013; notes that up to 30 per cent of people with cystic fibrosis on the lung transplant list will not receive one and will die waiting; further notes that although new treatments and better clinical care are helping people with cystic fibrosis live longer, most people will suffer irreparable decline in lung function and the only treatment option to prolong life significantly is a lung transplant; further recognises that there are currently around 80 people with cystic fibrosis awaiting a heart or lung transplant in the UK; welcomes the Cystic Fibrosis Trust's consultation to gather the views of stakeholders and highlight specific issues affecting transplantation for people with cystic fibrosis; and supports the call for all patients, family members, clinicians and transplant organisations to take part in the consultation to ensure that all those who are suitable for a lung transplant receive one and that those who do receive a transplant have the best possible outcomes.

This motion has been signed by a total of 47 MPs.