Newborn Screening For Duchenne Muscular Dystrophy

EDM number 1305 in 2013-14, proposed by David Anderson on 30/04/2014.
Categorised under the topics of Children and families, Diseases, Health education and preventive medicine and Genetics.

That this House welcomes the report of the All Party Parliamentary Group on Muscular Dystrophy on newborn screening for Duchenne muscular dystrophy; acknowledges the support provided by the Muscular Dystrophy Campaign in drawing attention to these important issues; notes that with potential treatments for the condition in or entering clinical trial, planning must begin now for a newborn screening programme; further notes the significant advances in genetic medicine that have taken place in recent years; and calls on the National Screening Committee to reflect these advances by updating its appraisal criteria for newborn screening programmes.

This motion has been signed by a total of 34 MPs.