Empower: Access To Medicine Campaign
EDM number 1250 in 2013-14, proposed by Geoffrey Clifton-Brown on 02/04/2014.
That this House welcomes the hard work of campaigners such as Les Halpin, who lost his battle with motor neurone disease in September 2013; notes the impact that such campaigns such as Empower: Access to Medicine, which Les founded, and those in the muscular dystrophy community, such as Joining Jack and Duchenne Children's Trust, have had on progressing the issue of drug development; further welcomes the news that the Government will commit to an early access scheme; further notes that this is a potentially significant development for those suffering from rare diseases with unmet clinical need and a clear demonstration that pressure from the patient community can have a positive effect; and calls on the Government to ensure that the early access scheme reaches as many patients as possible.
This motion has been signed by a total of 21 MPs.
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