Cystic Fibrosis Week 2012
EDM number 8 in 2012-13, proposed by Bob Russell on 09/05/2012.
Categorised under the topics of Diseases and Health education and preventive medicine.
That this House welcomes Cystic Fibrosis Week which took place from 29 April to 5 May 2012; notes that Cystic Fibrosis Week provided a valuable opportunity to increase awareness and knowledge of cystic fibrosis and campaign for improvements in care and support for the 9,000 people with the condition in the UK; acknowledges that cystic fibrosis is one of the UK's most common life-threatening inherited diseases; further welcomes the latest figures which show that the median age of survival has increased to 41 years; acknowledges concerns that cystic fibrosis services are struggling because of the increased patient population, cutbacks in posts vital to cystic fibrosis care and cuts in beds suitable for accommodating people with cystic fibrosis; and calls on the Government to ensure cystic fibrosis services are adequately resourced with extra bed capacity suitable for people with cystic fibrosis.
This motion has been signed by a total of 38 MPs.
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