Neuromuscular Services In The Nhs South Central Region

EDM number 412 in 2010-12, proposed by Steve Brine on 06/07/2010.
Categorised under the topic of Health services.

That this House congratulates the NHS South Central Specialised Commissioning Group onits announcement in March 2010 of an in-depth review of specialised neuromuscular services in the region; notes that there are 4,800 people living in the South Central NHS region affected by muscular dystrophy and related neuromuscular conditions; further notes that the review follows a 12 month campaign by the South Central Muscle Group, a coalition of local families, health professionals and experts in these conditions supported by the Muscular Dystrophy Campaign; further congratulates the South Central Specialised Commissioning Group forits commitment to fund two vital neuromuscular care advisers, to be based at the specialist centres at Southampton and Oxford to provide invaluable support for families living with these rare and very rare conditions; further notes that neuromuscular care advisers provide cost-effective care by helping to save consultant time and, as part of a multidisciplinary team, help to prevent expensive and traumatic emergency hospital admissions for this group of patients; and calls on the Government to urge the Specialised Commissioning Group to bring forward recommendations followingits review to ensure that all families living with muscle disease in the region have access to specialist multidisciplinary care which improves quality of life and increases life expectancy.

This motion has been signed by a total of 7 MPs.