Duchenne Muscular Dystrophy

EDM number 206 in 2010-12, proposed by David Anderson on 10/06/2010.
Categorised under the topics of Children and families, Diseases and Health services.

That this House commends the work of charity Action Duchenne in highlighting the need to deliver care levels that will extend by up to 15 years the lives of children living with the severe muscle-wasting disease Duchenne Muscular Dystrophy; endorses the recently agreed International Standards of Care guidelines for Duchenne published in the Lancet Neurology in March 2010; supports Duchenne families who are calling on the Government to ensure that levels of care for these vulnerable children are not cut in the forthcoming spending review; believes that recommendations in the new guidelines for multi-disciplinary care for Duchenne patients should be implemented for all, irrespective of where they live; and further believes that further funding should be made available to continue research and development of new medicines to cure this devastating condition.

This motion has been signed by a total of 42 MPs, 1 of these signatures have been withdrawn.