Rare Disease Day 2009

EDM number 914 in 2008-09, proposed by Evan Harris on 26/02/2009.
Categorised under the topic of Diseases.

That this House acknowledges the second Pan-European Rare Disease Day on 28 February 2009, which successfully highlights rare diseases and the challenges faced by patients, carers, healthcare professionals and policy makers, working to ensure the highest quality of services and available treatments are accessible to often isolated and vulnerable people; notes that there are over 6,000 rare conditions identified, affecting more than 3.5 million people in the UK; further notes that 75 per cent. of those with a rare condition are children and 30 per cent. die before the age of five years; welcomes the newly-established campaign Rare Disease UK; and urges the Government to move forward with the European Commission's Communciation to create a National Plan for rare diseases.

This motion has been signed by a total of 108 MPs, 4 of these signatures have been withdrawn.