Paroxysmal Nocturnal Haemoglobinuria (EDM601)

Paroxysmal Nocturnal Haemoglobinuria

EDM number 601 in 2008-09, proposed by David Taylor on 27/01/2009.
Categorised under the topic of Diseases.

That this House welcomes the Government's decision to nationally commission services for the treatment of the ultra-orphan disease Paroxysmal Nocturnal Haemoglobinuria (PNH); acknowledges that without treatment with eculizumab patients with this chronic life threatening disease are left only with the options of recurrent blood transfusions and, in a small number, bone marrow transplant; and congratulates the PNH Alliance of clinicians, industry and patients who are working to ensure PNH services continue to improve patient outcomes.

This motion has been signed by a total of 37 MPs, 1 of these signatures have been withdrawn.

MP	Date	Constituency	Party	Type
David Taylor	27/01/2009	North West Leicestershire	Labour	Proposed
Doug Naysmith	27/01/2009	Bristol North West	Labour	Seconded
Mark Durkan	27/01/2009	Foyle	Social Democratic and Labour Party	Seconded
Lindsay Hoyle	27/01/2009	Chorley	Labour	Seconded
Bob Spink	27/01/2009	Castle Point	Independent	Seconded
Richard Taylor	27/01/2009	Wyre Forest	Independent	Seconded
Gordon Prentice	28/01/2009	Pendle	Labour	Signed
Alan Simpson	28/01/2009	Nottingham South	Labour	Signed
Lynne Jones	28/01/2009	Birmingham, Selly Oak	Labour	Signed
Martin Caton	28/01/2009	Gower	Labour	Signed
Jeremy Corbyn	28/01/2009	Islington North	Labour	Signed
Andrew Dismore	28/01/2009	Hendon	Labour	Signed
Jim Dobbin	28/01/2009	Heywood and Middleton	Labour	Signed
Peter Bottomley	28/01/2009	Worthing West	Conservative	Signed
Desmond Turner	28/01/2009	Brighton, Kemptown	Labour	Signed
Phil Willis	28/01/2009	Harrogate and Knaresborough	Liberal Democrat	Signed
John Leech	28/01/2009	Manchester, Withington	Liberal Democrat	Signed
Angus MacNeil	28/01/2009	Na h-Eileanan an Iar	Scottish National Party	Signed
Nick Harvey	29/01/2009	North Devon	Liberal Democrat	Signed
Mike Hancock	02/02/2009	Portsmouth South	Liberal Democrat	Signed
Ann Cryer	02/02/2009	Keighley	Labour	Signed
Simon Hughes	04/02/2009	North Southwark and Bermondsey	Liberal Democrat	Signed
Bill Etherington	04/02/2009	Sunderland North	Labour	Signed
Rudi Vis	04/02/2009	Finchley and Golders Green	Labour	Signed
Betty Williams	04/02/2009	Conwy	Labour	Signed
Roger Williams	05/02/2009	Brecon and Radnorshire	Liberal Democrat	Signed
John Austin	09/02/2009	Erith and Thamesmead	Labour	Signed
Frank Dobson	23/02/2009	Holborn and St Pancras	Labour	Signed
Frank Cook	23/02/2009	Stockton North	Labour	Signed
Bob Russell	24/02/2009	Colchester	Liberal Democrat	Signed
Brian Jenkins	24/02/2009	Tamworth	Labour	Signed
Michael Clapham	24/02/2009	Barnsley West and Penistone	Labour	Signed
John McDonnell	27/02/2009	Hayes and Harlington	Labour	Signed
Nigel Dodds	03/03/2009	Belfast North	DUP	Signed
Jennifer Willott	06/03/2009	Cardiff Central	Liberal Democrat	Signed
Iris Robinson	16/03/2009	Strangford	DUP	Signed
Michael Jabez Foster	Unknown			Withdrawn

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