London Muscle Group

EDM number 2044 in 2008-09, proposed by Lynne Featherstone on 14/10/2009.
Categorised under the topics of Diseases and Health services.

That this House welcomes the launch of the London Muscle Group; notes that the new group will campaign to improve access to essential specialist care and support for patients living with muscle disease; further notes that the Group is led by local families and people affected by muscular dystrophy and other related neuromuscular conditions; is concerned to learn of the serious problems that the 7,500 people with muscular dystrophy and related neuromuscular conditions face living in London; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; calls on the London Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services which will identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across London.

This motion has been signed by a total of 6 MPs.