Launch Of Muscle Group: South East Coast

EDM number 1888 in 2008-09, proposed by Norman Baker on 14/07/2009.
Categorised under the topics of Diseases, Health education and preventive medicine and Health services.

That this House welcomes the launch of Muscle Group: South East Coast; notes that the new group is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who will campaign to improve access to essential specialist care and support; is concerned that a new report published by the Muscular Dystrophy Campaign illustrates serious problems affecting the 4,200 people with muscular dystrophy and related neuromuscular conditions living in Kent, Surrey and Sussex; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; is deeply concerned that some patients are being denied access to multi-disciplinary specialist care; calls on the Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services to identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across the NHS South East Coast region.

This motion has been signed by a total of 20 MPs.