South Central Muscle Group Launch

EDM number 1429 in 2008-09, proposed by Martin Salter on 05/05/2009.
Categorised under the topics of Diseases, Health education and preventive medicine and Health services.

That this House welcomes the launch of the South Central Muscle Group; notes that the new group is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who will campaign to improve access to essential specialist care and support; is concerned that a new report published by the Muscular Dystrophy Campaign illustrates serious problems affecting the 4,000 people with muscular dystrophy and related neuromuscular conditions living in Berkshire, Buckinghamshire, Hampshire, Oxfordshire and the Isle of Wight; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; is deeply concerned that some patients are being denied access to multi-disciplinary specialist care; calls on the South Central Specialised Commissioning Group to meet with the Muscular Dystrophy Campaign and the leading clinicians in the area; and further calls on the Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services which will identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across the NHS South Central region.

This motion has been signed by a total of 17 MPs.