Care For Cystic Fibrosis Patients
EDM number 397 in 2007-08, proposed by Kerry McCarthy on 27/11/2007.
Categorised under the topics of Diseases and Health services.
That this House welcomes the fact that average life expectancy for cystic fibrosis patients has increased to over 30 years and that a child born today with cystic fibrosis can expect to live into their late forties; expresses concern that, despite medical advances, evidence suggests that unacceptable variations in the standard of care, support and treatment still exist; believes that all patients should be entitled to the best care, support and treatment; welcomes the recommendations of the Back the Kid panel of expert clinicians on the future of cystic fibrosis care; and calls on the Government to conduct an audit of cystic fibrosis services in order to plan for high-quality services for all cystic fibrosis patients in the future.
This motion has been signed by a total of 66 MPs.
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