Muscular Dystrophy

EDM number 1553 in 2007-08, proposed by Alun Michael on 13/05/2008.
Categorised under the topics of Diseases and Health services.

That this House welcomes the publication of a new report by leading neuromuscular physiotherapists and clinicians as part of the Muscular Dystrophy Campaign's Building on the Foundations campaign; recognises that for many adults and children living in Wales with muscular dystrophy and related neuromuscular conditions physiotherapy is essential in maintaining the best quality of life, for the longest time possible; is concerned that many patients in Wales with neuromuscular conditions are being denied timely and ongoing physiotherapy on the NHS; notes that young adults often have their physiotherapy withdrawn when they reach adulthood; further notes the serious concerns raised in the Muscular Dystrophy Campaign's oral evidence to the Welsh Affairs Select Committee regarding cross-border arrangements; urges the Welsh Assembly Government to undertake a review of neuromuscular services; and calls on the Welsh Assembly Government to recognise neuromuscular services as a specialist service best delivered as part of a multidisciplinary team, to ensure improved standards of care for all patients with neuromuscular conditions.

This motion has been signed by a total of 45 MPs, 2 of these signatures have been withdrawn.